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Showing posts with the label Familial Adenomatous Polyposis

The number of polyps / adenomas increase after Whipple Surgery, why?

   UPDATED July 2 2025 The number of polyps / adenoma, in my remaining colon, and rectum, has increased since after my Whipple Surgery, and I started taking a Proton Pump Inhibitor. Do Proton Pump Inhibitors (PPI) cause an  increase the numbers of polyps with   Familial Adenomatous Polyposis , FAP? As of June 17, 2025 there are now several small Fundic gland polyps in my stomach, this is the 1 st time I can remember or seen any word of these, and not sure if this because I have been taking a PPI for over 19 months. I cut the dosage in1/2 and will see if this effects the appearance or number of the Fundic gland polyps.  A little of my story : I have lived with Familial Adenomatous Polyposis (FAP) for 45 years. I had a previous colectomy in March 1980, and have been undergoing regular follow up Endoscopy, and Colonoscopy since that time. Biopsies results from the Endoscopy, July 2023, showed low-grade dysplasia/adenoma
 ( some of the cells look a...

Return to Mountain biking guiding, and coaching.

 I am excited and feeling very thankful that I am able to return to work with Alberta66 MTB as a coach / guide this season. It was a long difficult recovery from the Pancreaticoduodenectomy or "The Whipple" in Nov 2023. Things didn’t go as plan after the surgery, complications slow things down and set back the recovery. Staying focused on a positive out come and making a full recovery was the main goal but spending 140 days in the hospital took a lot out of me. Walking as much as I could early on really helped me keep moving, and then I was gifted an e bike by family and friends which got me on the bike as soon as I could build the strength to sit on the saddle. I lost around 13 kgs which I had to work at putting back on, a TNP and a NJ feeding tube helped and then I was able to transition to solid food. IT’s been a challenge to stay on top of eating enough and staying active. Because of the new changes to the digestive system I have to eat small meals/snacks more often...

Apr 1, 2024, Happy Enterocutaneous Fistula healing day.

 WARNING: This post contains medical graphic pictures. Apr 1, 2024 was a day I had been dreaming about since my Whipple Surgery ( Nov 17, 2023) and the complications that started a few days later. It was the day the Enterocutaneous Fistula stopped outputting any fluid or paste. I was secretly happy to see no discharge from the fistula, but was still skeptical to believe things were healed. I think I didn’t even tell the medical team for a day or 2. For 4 months I had spent many sleepless nights reading about how these fistulas could cause problems requiring surgery to try and fix them. I had even had a room mate for a day who was back in the hospital again because they were experiencing problems with a similar fistula for over a year and a half. I was very concerned the fistula would cause more problems than the original surgery or reduce the quality of my life. Zero output of the fistula was a huge step forward in the recovery but it was still another 3 months before the scab fel...