Nov 18, 2023 update.

Originally post on Facebook and Instagram, an updated after the first night post Whipple Surgery, Nov 18, 2023.

"The day started a little rough. The epidural had a problem controlling the pain in one spot. Things are better now and they even had me out of bed. I was feeling weak but glad to be up even for a short time. Small victories eh. Hope"

Nov 18, 2023.

Nov 18, 2023, proud to be standing.

Nov 18, 2023 updated after the 1st night post Whipple.

Comments

Vitamins, minerals and energy.

UPDATED Mar, 2026. Happy to say blood work looks great, Ferritin, Iron, Vit D and Vit A are all back up into the normal range. I had been living a very active life since I was in my late 30’s. I started road biking , and then mountain biking and loved it. Mountain biking became my to go to exercise, and I loved peddling up the longest hills I could find . I took part in many races, single and multi day events, never really too win but to see what I was capable of doing, to see new wilderness areas and meet good people. Living with Familial Adenomatous Polyposis (FAP) gave me a reason to take care of myself and keep pushing myself, I figured if I was able to ride a bike as much as I did there wasn’t anything wrong with me. In July 2023 polyps in my duodenum started to show signs of change, and a large flat adenoma was un able to be removed, so I decided to have the Whipple Surgery in Nov 2023. The surgery went okay, biopsies of the large adenoma showed high gr...

June 23, 2024 up date.

Originally posted on social media June 23, 2024. "UPDATE: June 24, the fistula scab fell off this morning, revealing what looks like a fully healed wound site. I am so excited, it's been something I have dreamed about for over 6 months I will still go for the CT scan, as the incision site is deformed with a depression or "valley" where the fistula was. ORIGINAL POST: I had a follow up last week with the surgeon, I was asking why it's taking so long for the fistula to heal. The fistula hasn't out put anything since Apr 2 (84 days to the date of this post), and the last CT scan was done on Apr 17. He showed on the CT scan what the fistula and pocket under it looked like over 2 months ago. I guess it explains some of the reason why it's taking so long to fully heal. I have a follow up CT scan in 2 weeks and hope it shows the healing is progressing. I was given the okay to try fluids by mouth last week, that seemed to go well. Nervously I have moved on to ...

Returning to My Happy Places, after The Whipple.

In Sept 2023, I was in the process of making the decision to have, or not have The Whipple , I asked the surgeon “ Will I be able to ride my mountain bike after The Whipple?” I love riding my mountain bike, and being out in nature, it has helped me for years deal with living with Familial Adenomatous Polyposis (FAP) . The surgeon told me I should make a full recovery, and able to live an active life. After hearing this I started to make a plan of how I would get through the surgery, and recovery. I was figuring 7 days in hospital, and 3 months at home, this seemed to be the standard. I had no idea it would be such a long difficult time . One of the first things I did, in the month that was leading up to the surgery, was buy a flag with a happy face on it. Then took this on a mountain bike trip, spending time each day saluting the flag , starting the process of focusing on a positive outcome for the surgery. I was lucky to have my family, and friends in my life. I enl...

The FAP - Whipple Report

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