Skip to main content

Apr 17, 2024 update.

 Originally posted on social media Apr 17, 2024.

"April 17th, 2024 is the 5 month Whipple Surgery anniversary, and marks 131 days, and counting, in hospital. I was home in Jan for 22 days, and a few hours on day passes has been my only break from the hospital.
Currently working on getting the small bowel working and digesting liquid nutrition via the nasojejunal(NJ) feeding tube. TPN IV nutrition is being scaled back as the NJ feeding is increased. The fistula(leak) from my stomach to the insecion is slowly healing. To by pass the leak the feeding tube goes through the stomach past the leak into my jejunum, part of the small bowel. Nothing to eat or drink for awhile longer because of the leak in the stomach. 😩
There have been some rough days in the last few weeks where frustration and negative energy got to me. Progress seemed to be slowing down and my dream of getting home earlier was crushed. 😭
With the support and help from family, friends, and the health care team I was able to get back to a more positive way of dealing with things. 🥰
I love the great people in my life. I am so thankful for all that you do for me, you are the reason I can do this"
 
Apr 4, 2024.

 

 

 

Comments

Popular posts from this blog

The number of polyps / adenomas change after Whipple Surgery, and start of taking a Proton Pump Inhibitor(PPI) why?

   UPDATED Mar 16 2026 The number of polyps / adenoma, in my remaining colon, rectum and stomach, has increased since after my Whipple Surgery , and I started taking a Proton Pump Inhibitor. The Whipple re-configures the digestive tract, and creates a new connection between the stomach and the small intestine (jejunum). Proton pump inhibitors (PPIs) are prescribed to patients after a Whipple to prevent ulcers and bleeding in the upper digestive tract . Do Proton Pump Inhibitors (PPI) cause an  increase the numbers of polyps with   Familial Adenomatous Polyposis , FAP ? There is a study,  Journal of Yeungnam Medical Science, that seems to suggest that using a Proton Pump Inhibitors (PPIs) for over 12 months is a significant risk factor for developing advanced colon polyps. As of June 17, 2025 there are now several small  Fundic Gland Polyps in my stomach, this is the 1st time I can remember or seen any word of these, and not sure if this because...

What's it like Volunteering on a trail day.

 I decided to try and retire this year, not sure financially this was a good decision, but mental and physical I know I have to try and I know it will help keep me healthy. If I stay healhty and active I will stay out of the hospital I hope. A trail day is helping repair and maintain a multi use ( horse back, hiking, running and mountain biking) network of trails. I live in a beautiful part of the world, the foot hills of the Canadian Rocky Mountains. There are several networks of trails and trail associations here, we are very lucky. I think my favorite trails to work on are the old classic trails in Kananaskis Country . Most of these trails haven't seen any attention in many years, so they are over grown and eroded. The trails are often in a remote wilderness area, so getting to them can often be an adventure, we hike, bike and use e bikes to get to locations. You have to be prepared to be there for several hours, with enough food, water and extra layers in case the weather chan...

A short summary of the Whipple Surgery, Pancreaticoduodenectomy, and the complications.

 A short summary of the Whipple Surgery, Pancreaticoduodenectomy , the complications, and 140 day Hospital stay that followed. Most of the information is a direct copy from my Hospital discharge report (spelling mistakes have not been corrected). I have added some other information, those notes are in italics. Warning medically graphic picture links included. A more complete summary, with pictures maybe seen here : https://fap-whipple-report.blogspot.com/2025/01/a-summary-of-key-events-for-whipple_10.html I had the Whipple Surgery in Nov 2023, it seemed to go well, 4 hrs of less in the OR. Normal as it could be the 1st few days, mild pain, walking as often as I could. Nov 24, 2023 Nurses note “ Abdomen +++ distended and firm.” “ Patient now complaining of 10/10 pain and laying in bed in fetal position holding abdomen.” “ Pending CT, form completed, IV access available.” Nov 26,2023 Nurses note “ CT abdomen pelvis ordered on Friday. Still not done on Sunday. Action: I spoke t...