Living with Familial Adenomatous Polyposis (FAP) I am starting to realize I have a lot of Health Care Workers to thank. From back in the late 70’s, right up to the current day, and into the future. Some I remember well to this day, like the original surgeon who did my Colectomy back in March, 1980, he seemed to live at the hospital. To the surgical team that took care of my Pancreaticoduodenectomy, The Whipple, in Nov 2023, and the complications that followed, I owe these Doctors a big Thank You. But it’s more than that, there have been a number of Gastroenterologists that have followed me on a regular bases, from 3, 6 or 12 month intervals, using their skills checking for, and removing polyps. I can’t say enough about the Nurses that are always there to take care of me, most times I have had more contact with them than any other person on the team, and there are several I will never forget how they went above, and beyond taking care of me. They are all wonderful caring individuals. I can’t forget about the ones I have only seen once, and those behind the scenes who I will never meet, or even know their name. I get caught up in the stress, and anxiety of living with FAP, and have not always been in the right mind frame to realize these Health Care Workers are the reason I can share my story. I have probable forgotten to say Thank You to many of you, I am truly Grateful for all that you have done, THANK YOU.
I had been living a very active life since I was in my late 30’s. I started road biking, and then mountain biking and loved it. Mountain biking became my to go to exercise, and I loved peddling up the longest hills I could find . I took part in many races, single and multi day events, never really too win but to see what I was capable of doing, to see new wilderness areas and meet good people. Living with Familial Adenomatous Polyposis (FAP) gave me a reason to take care of myself and keep pushing myself, I figured if I was able to ride a bike as much as I did there wasn’t anything wrong with me. In July 2023 polyps in my duodenum started to show signs of change, and a large flat adenoma was un able to be removed, so I decided to have the Whipple Surgery in Nov 2023. The surgery went okay, biopsies of the large adenoma showed high grade dysplasia and I had a lot of complications after. As a result of the complications I was put on TNP feeding, then transitioned t...
Comments
Post a Comment