Skip to main content

July 7, 2024 update.

 Originally post to social media July 7, 2024.

"TUBELESS, and not just taking about my bike (Unit 102), but myself as well. For the first time from Nov 17, 2023, to July 4, 2024, 231 days, I don't have any tubes coming out of me, no IV, epidural, catheter, PICC, NG, drain, or NJ feeding tube😊.

The NJ Feeding tube was removed last week, and it feels great. I have been drinking a mix of protein, high calorie drinks, and eating soft foods. Each day I am trying a new food item to see how it goes with digestion. I have to take Viokace, a Pancreatic enzyme, in the pill form now. I am still not sure how many pills I need to take each time. It's hit or miss, trial and error approach. Try something to eat, take a pill, write down when I take it, and if there is any reaction or discomfort. After sometime I will see if there is a pattern to help me figure out how many pills I need. There is a chance my pancreas will work enough so I won't need to take any enzymes, that would be ideal. 🤞🙏

I am feeling better, slowly getting more energy, but have to balance my activity with my energy in take. I still have some abdominal muscle pain, tenderness, and numbness around the incision site.

Along with the biking I have been able to do, I have started stretching, doing light weights, and having random dance parties to help loosen up and strength my core. I have to say the random dance parties are my favorite. 😊

Add some music to your life, things are always better with tunes."


 



Comments

Popular posts from this blog

Getting my strenght back after a Pancreaticoduodenectomy, The Whipple Surgery.

 The  Pancreaticoduodenectomy or "The Whipple" , Nov 2023, went okay they tell me, but after I developed a pancreaticojejunostomy (PJ) leak, followed by hepaticojejunostomy (HJ) leak, gastrojejunostomy (GJ), and a stubborn fistula. The resulting complications , leaks, and fistula did so much extra damage to my body, and abdominal muscles, I lost most of my core strength, and flexibility. I was very discourage and worried my quality of life was going to change more because of the complications, than from the changes to my body from the surgery. I told my friends if I can walk, and eat everything else will be a bonus, I just wanted to get out of the hospital, and get on with my “new normal” life. I still have a golf ball size scar in the middle of my incision, from the fistula, the tissue is sunk in, and much thinner the the surrounding tissue. I am concerned about future problems, like hernias, but live a very active life so have to balance getting stronger, enjoying what I li...

Remembering my Dad, Feb 12, 1980.

 On the  45th eve of my dad’s passing, I was reading some hand written notes by my mother. Talking to dad on one of his last days. I was struck by a few lines that stated dad was upset that on one of the last time I was to see him I had a very blank look, and wasn’t showing any emotion. But inside I was crying and no idea why I didn’t show it. I have lived with this guilt I guess from that day. We did get to visit one last time and he told me he was proud of me, I told him I would never forget him. He was funny, kind, and a gentle soul, always wanting to help those around him. We were close growing up, but somewhere along the way I started to rebel and pretend I didn’t like to hang out with him doing chores around the yard, but honestly these were my favourite times. He had a habit of making up songs, one was called ‘Scott of the Arctic”, he was singing it one day and for some reason I told him I hated that song and never want to hear it again. I think I wanted to go play with...

Feb 7, 2024 update.

 Originally posted to social media Feb 7, 2024. I was readmitted on Jan 28, 2024 after developing a larger opening in the fistula, incision and more complications .  "A mix of XRay, MRI, and CT scans, still trying to sort out the leak from my incision. They found the leak, Liver bile duct. They tried to insert a stent/ drain in to control the leak and let things heal, but weren't able to. A second attempt was booked but canceled as there is a blood clot in the left portal vein of the Liver, also air and the bile duct is in flamed. So plan is to hopefully repeat the stent/drain insertion in 3 weeks. Till then they will take me off fluids, food, and try shut down the digestive system see if the bile leak slows down and heals. Fingers cross 🤞."   Feb 2, 2024.   Jan 30, 2024.