May 24, 2024 update.

Originally post to social media May 24, 2024.

"Today started out as most of my days do lately, feeling tired and low energy. I had to return to the hospital and have a new NJ feeding tube installed. Sitting in the waiting room brought back a flood of emotions. I started thinking about the fact I would pick up another month of feed fluid next Wed, and was this every going to end. I returned home and as the freezing wore off the tube was bugging my throat, making it hard to talk or swallow. I felt very discouraged, not sure I had the drive to keep going with this feeding, but I have to keep going.

I decide a nap would help things. Waking up feeling a little better, but still struggling to get my self out of a very negative place was a challenge. Sitting in my comfy chair, getting ready for another 14 hr feed cycle the tube settle in to a comfortable place. Still knowing the nausea would soon start I wasn't looking forward to the evening.

A knock on my door and a surprise that made me smile. Family and friends had started a Go Fund Me page with the goal of buying an e bike for me. The bike arrived at my place today. I can't tell how good it was to see the bike, I sat on it, it felt really good. I took it for a ride around the yard. Nothing bugged me while I rode, no pain, no nausea, I felt normal, finally. Amazing how things happen when you need them the most.

I pondered what to call the new bike and it came to me. "Unit 102" in honour of all the health care works on the unit where I spent 143 days, and in remembrance of my friend Thu Nguyen where we met and spent time together walking the halls. I will never forget that place and time spent there. 🙏

Days can start out shitty, but things can change for the better. I have to be reminded of that often. Thank you all for being part of my life and this journey, I love you."

Comments

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