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May 4, 2024 update.

 Originally posted on social media May 4, 2024.

"Discharged 5 days ago after a total of 143 days in the Foothills (that takes in to account that l was home 22 days in Jan).

The fistula has stopped out putting but still healing. Still not eating anything until the fistula is healed. I am being very cautious, maybe too cautious, I won't even let the team remove the bile duct stent/drain yet. Just want to make sure the fistula and all the damage it caused has healed.

I was discharged on the home feeding tube system. It gives me 2550 calories, 1700 ml of fluid in a 16 hour feeding cycle. Also have to take enzymes to help digest the feed fluid, so I am getting up several times over night to mix them in. Discovering the fluid at room temp is still too cool for the digestive system, warming it up slightly using a heating pad helps cut down on the nightly nausea.

Not sure how long I will have to stay on the feeding system, maybe a month. Then transition on to solid food. It's been a long journey to get where I am now. I still have days where the slow progress frustrates me and have to be reminded that it was a long road to get here and I am getting stronger. Thank you to all those who remind me of the positive gains I have made

I feel fortunate to be able to post about this journey and share what is happening. There have been some obstacles along the way, but it's been filled with heart touching kindness. I have so many wonderful people in my life, thank you all for helping me."

 


 

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